New Survey Shows Patients in Asia Pacific Fail to Recognize Their Fragility Fracture is Due to Osteoporosis, Missed Opportunity to Prevent Another Fracture
Nearly half don't know that a fracture is a warning sign for a treatable underlying cause1;
3 out of 4 with early diagnosis of osteoporosis say it's key in preventing another fracture1
HONG KONG, Oct. 20, 2017 /PRNewswire/ -- Almost three quarters (74%) of patients in Asia Pacific who have had a fragility fracture say they are worried or very worried about breaking another bone1, but nearly one-third (29%) of patients did not discuss fracture prevention and osteoporosis, the underlying cause, with their doctor1; according to a new survey. The results of the Fight the Fracture-International Osteoporosis Foundation (IOF) Survey 2017 were announced at the 5th Scientific Meeting of the Asian Federation of Osteoporosis Societies (AFOS) in Kuala Lumpur. The Survey interviewed 400 patients from five Asian countries/territories aged 60 years and over who had suffered a fragility fracture in the last two years and is the first project undertaken by Fight the Fracture, a public education campaign jointly launched by AFOS, IOF and Amgen.
Other key survey findings include:
• Almost 80% of patients say their fractures have had a great impact on their quality of life1.
• Of those patients who had a late diagnosis of osteoporosis, 4 out of 5 (80%) wish they had received earlier diagnosis as they feel they would have benefited from it1.
• Of those patients who had an early diagnosis of osteoporosis, 3 out of 4 (75%) agree that it has been key in helping prevent another fracture1.
"I remember feeling extremely, extremely unwell when the fracture happened and I thought I was going to die," said Madam Zhuang, age 68 of Taipei, who had suffered a fracture three years ago while on holiday in Japan, and was diagnosed with osteoporosis soon after. "I am glad my osteoporosis is being treated now, as I cannot risk another fracture ‒ my orthopaedic specialist told me that a second fracture within a year of the first one could be fatal."
A Failure to Connect
Despite the great extent to which the lives of patients and their families are impacted by fractures, the survey showed that patients in Asia Pacific have a limited understanding of fragility fractures and osteoporosis as an underlying cause, as well as increased risks of another fracture after the first one:
• Although a majority of patients (78%) claim they know what osteoporosis is1, over 80% of patients believe that weak bones are an inevitable feature of the normal ageing process1.
• Almost 40% of patients were not sure, or did not believe that they are at risk of having another fracture, whether at the same or different site1. Research shows however, that once a patient suffers a fragility fracture his or her risk of a future fracture increases up to 10 times2.
• More than one-third (37%) of patients say they were diagnosed with osteoporosis only after multiple subsequent visits to their doctor1.
Public Awareness Critical
"Fragility fractures have crippling consequences for patients and their families. A second or third fracture is even more devastating for a patient, potentially costing his or her healthy mobility, independence or even life," said Professor Cyrus Cooper, IOF President. "These findings are welcomed, timely evidence of the urgent need for greater awareness and understanding among patients, their families and caregivers. We encourage patients who have suffered a fracture to start conversations with their doctors immediately about ways to prevent another fracture from happening to them again."
The survey is the first phase of the Fight the Fracture campaign, which aims to empower patients who have suffered a fragility fracture and their caregivers to proactively seek medical professional help in secondary care prevention ‒ the prevention of a subsequent fracture ‒ by providing them with educational information, tools and resources. These resources are hosted on www.fightthefracture.asia.DOWNLOAD NEWS RELEASE HERE
AFOS consists of 10 member societies spanning 10 Asian countries and regions. It is the only pan Asian professional association that targets osteoporosis as an agenda. It encourages collaborative effort in clinical research and sharing of knowledge into osteoporosis. Osteoporosis and Sarcopenia, the AFOS journal, has been set up to for this platform. There is also concerted effort to reduce the load of osteoporosis in the region by encouraging advocacy, public awareness programmes as well as programmes to identify and treat the high risk populations.
Amgen is committed to unlocking the potential of biology for patients suffering from serious illnesses by discovering, developing, manufacturing and delivering innovative human therapeutics. This approach begins by using tools like advanced human genetics to unravel the complexities of disease and understand the fundamentals of human biology.
Amgen focuses on areas of high unmet medical need and leverages its expertise to strive for solutions that improve health outcomes and dramatically improve people's lives. A biotechnology pioneer since 1980, Amgen has grown to be one of the world's leading independent biotechnology companies, has reached millions of patients around the world and is developing a pipeline of medicines with breakaway potential.
About the International Osteoporosis Foundation
The International Osteoporosis Foundation (IOF) is the world's largest non-governmental organization dedicated to the prevention, diagnosis and treatment of osteoporosis and related musculoskeletal diseases. IOF members, including committees of scientific researchers as well as 240 patient, medical and research societies in 99 locations, work together to make fracture prevention and healthy mobility a worldwide heath care priority. www.iofbonehealth.org
About Fight the Fracture and the Fight the Fracture-IOF Survey 2017
Fight the Fracture, a public education campaign, aims to empower patients who have suffered a fragility fracture and their caregivers to proactively seek medical professional help in secondary care prevention ‒ the prevention of a subsequent fracture ‒ by providing them with educational information, tools and resources. With this support in place, we envision patients will have a better understanding and awareness of fragility fractures and a common underlying cause, osteoporosis, which would encourage them to take the necessary steps to initiate a conversation with their doctor toward improved, proactive management of their condition.
Supported by the International Osteoporosis Foundation and Amgen, the Fight the Fracture-IOF Survey 2017 was conducted in June 2017, through interviews with 400 patients who have suffered a fragility fracture across five Asia Pacific countries/territories – Hong Kong, Japan, Singapore, Taiwan and Thailand. All patients surveyed had suffered a fracture within the last two years and are aged 60 or older.
About Fragility Fractures and Osteoporosis
Osteoporosis affects both men and women3. Osteoporosis is a condition that weakens bone over time, making them thinner, more brittle and more likely to break3. As a result, the skeleton becomes fragile, so that even a slight bump or fall can lead to a broken bone ‒ referred to as a fragility fracture4. Fractures most often occur in the hip, spine, arm, wrist, ribs, legs and pelvis5. Fractures are expensive to treat, and disabling to the lives of those affected5. Moreover, fractures are associated with heightened risk of death6.
Osteoporosis can significantly compromise quality of life, leading to loss of independence, chronic pain, disability, emotional distress, lost productivity and reduced social interaction6. There is no cure for osteoporosis, however steps can be taken to help prevent, slow, or halt its progression6.
Risk factors for osteoporosis include age, smoking, excessive alcohol consumption, previous broken bones, a family history of osteoporosis and low body weight7.
Osteoporosis may be managed with anti-osteoporotic medication, weight-bearing exercise, adequate calcium intake and vitamin D exposure (sunlight and/or supplements are often required)6.
1 Data on file: Fight the Fracture-International Osteoporosis Foundation (IOF) Survey 2017 ‒ Regional Consolidated Report. 17 July 2017.
2 Lyet JP. Fragility Fractures in the Osteoporotic Patient: Special Challenges. JLGH 2006;1(3):91-95.
3 International Osteoporosis Foundation. What Is Osteoporosis? 2015. Available at: http://www.iofbonehealth.org/what-is-osteoporosis (Last accessed Sep 2017)
4 International Osteoporosis Foundation. Capture the Fracture: A Global Campaign to Break the Fragility Fracture Cycle. 2012. Available at: https://www.iofbonehealth.org/capture-fracture (Last accessed Sep 2017)
5 International Osteoporosis Foundation. Gaps and Solutions in Bone Health: A Global Framework for Improvement. Available at: http://share.iofbonehealth.org/WOD/2016/thematic-report/WOD16-report-WEB-EN.pdf (Last accessed Sep 2017)
6 International Osteoporosis Foundation. Facts and Statistics. Available at: https://www.iofbonehealth.org/facts-statistics (Last accessed Sep 2017)
7 International Osteoporosis Foundation. Who's at Risk? 2015. Available at: http://www.iofbonehealth.org/whos-risk (Last accessed Sep 2017)
Visit the Fight the Fracture website
Download the Fight the Fracture Survey Infographic
Healthcare community join forces to fight the growing epidemic of fragility fractures caused by osteoporosis
Dr Fen Lee Hew
President of AFOS
Seok Lin Hong
Corporate Affairs JAPAC
T +852 2843 1114
International Osteoporosis Foundation
Dr. Philippe Halbout, PhD
Chief Executive Officer
9 rue Juste-Olivier, CH-1260 Nyon, Switzerland